Rethinking Value in the Bio-economy

We draw on findings from qualitative interviews with health data researchers, GPs and citizens who opted out from NHS England's care.data programme to explore controversies and negotiations around data sharing in the NHS. Drawing on theoretical perspectives from science and technology studies, we show that the new socio‐technical, ethical and economic arrangements were resisted not only on the basis of individual autonomy and protection from exploitation, but also as a collective effort to protect NHS services and patient data. We argue that the resulting opt‐outs were a call for more personal control over data use. This was not because these citizens placed their personal interests above those of society. It was because they resisted proposed arrangements by networks of stakeholders, not seen as legitimate, to control flows and benefits of NHS patient data. Approaching informed consent this way helps us to explore resistance as a collective action for influencing the direction of such big data programmes towards the preservation of public access to healthcare as well as the distribution of ethical decision‐making between independent, trustworthy institutions and individual citizens.

In this article, we study do-it-yourself (DIY) biology, by looking in particular at the different forms of valuation within the DIY biology movement. Building upon recent work in economic sociology and the study of valuation, we take as case studies different projects developed by DIY biologists. Our approach is attentive to the moments when these projects are valued, i.e. during competitions, investment pitches, and crowdfunding campaigns. The projects analyzed involve both market valuations (with investments, products and potential markets) and non-market valuations (be they social, ethical or cultural). Our key argument is that value is produced through distributed and heterogeneous processes: products, practices, principles and places are valued at the same time. We show that there is not only a valuation of technical and production aspects (well highlighted in the key literature on valuation), but also a valuation of social links and of specific forms of organization. Both are inseparable - it is neither the object nor the context in themselves that are valued, but the “good-within-the-context-of-its-making”: the production of vegan cheese or biological ink and the places and communities of DIY biology or future markets are valued. The valuation practices we examine aim at producing an interest in a threefold sense: a general interest (a public good), an interest for the public (its curiosity), and a monetary interest (by making people financially participate).

How entrepreneurs plan their business and build their companies plays a central role in how academia-industry-government relations are shaped in a particular region. But how do specific regional styles of building companies and understanding these relations develop? This paper conceptualises the entrepreneurs in a cluster as a community of practice and shows that narrative learning in this community of practice plays a crucial role in how they develop their strategies. Entrepreneurs consider and learn from stories about past successes and failures in the cluster. In particular, they engage with these stories to make sense of what they strive for in building a successful company. Dealing with the complex dynamics of financialisation plays a crucial role in this learning process. This paper is empirically based on biographical interviews with entrepreneurs and serial entrepreneurs in the Vienna biotechnology cluster.